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Le syndrome d’Angelman – Parcours de vie des adultes: A book by Anne Chateau and Odile Piquerez just published in France and in French
This work covers all the aspects of the life of young adults with a rare neurogenetic disorder, the Angelman syndrome. It is still a poorly understood disability, especially with regard to adults, many of whom have never been diagnosed or have been diagnosed belatedly. Sparkling personalities often jovial and exuberant, they involve their parents, caregivers, educators and specialists in an enigmatic situation on which this work attempts to cast a new light. However, the universe which is described is often less than joyous, it is often hard for everyone, “full of sound and fury” with episodes of difference, indifference, rejection and violence. This book raises questions as to the attitude…
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Creamy Gelatin Fruit Snack
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Nutrition labeling and the dangers that could be hiding
By Marilyn Kennedy We are all pretty conscientious about reading food labels, especially those of us who have or who are caretakers for loved ones who have serious illnesses, allergies, and/or dietary restrictions. I recently went to the outpatient lab at my local hospital to have a routine blood draw. About halfway through, I began to pass out so the phlebotomist had me put my head between my knees, put a cold compress on the back of my neck, and offered me a juice box. I had the presence of mind to ask if the juice contained sugar. The response was, “I don’t know.” I took one or two sips…
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The History of Angelman Syndrome Translated into Basque
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The History of Angelman Syndrome Translated into Spanish
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The History of Angelman Syndrome Translated into Greek
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Dr. Harry Angelman’s 100th Birthday Anniversary
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Angels-in-Action Sweet Caroline
By Adrian Roberts, Mom to Caroline This is our Sweet Caroline and she was on her way to the 8TH grade prom in this pic. She attends Whittemore Park Middle and is 15 years old. She enjoys cheering for her school, was inducted into the Jr. Beta Club this year, and was on the Valentine’s Court at her school. She enjoys being with her family, staying current with social media, swimming (of course), playing with her sisters, lying on the beach, and making others around her smile. Her smile and laughter will illuminate any room she walks in. She tries her hardest at everything she does and she amazes us…
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Angelman Parent Quotes – Charles de Broin
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Angelman Parent Quotes – Greg Dohrman
