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Angelman Parent Quotes – Lizzie Sordia
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Teeth Tips
Flouride is newly classified as a developmental neurotoxin by medical authorities in the March 2014 Journal Lancet Neurology. Developmental neurotoxins are capable of causing widespread brain disorders such as Autism, Attention deficit hyperactivity disorder, learning disabilities, and other cognitive impairments. The harm is often untreatable and permanent. The CDC’s own evidence reveals Americans already show signs of flouride-overexposure and reports that 41% of American teenagers have dental fluorosis. Individuals with Angelman Syndrome may have a difficult time not swallowing the toothpaste when brushing. Avoiding exposure is best. Notice the warnings on the back of most tubes of toothpaste containing flouride. *Do Not Swallow *Contact Poison Control Center if accidentally swallowed…
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Angelman Syndrome Foundation Walk pictures 2014
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The Benefits of Water – Not Just Hydration
By Darren Humphries New Zealand Father to Elijah – Del + (2004 – 2007) Of all the places in the world that Elijah was the most comfortable – it was in water that he thrived. The only time we ever lost Elijah inside the house was water-related. He managed to get into the bathroom, close the door behind himself, get into the shower and close the door behind himself and sit splashing in the remnants of water. In the end it was his giggling as he splashed that gave him away. Even though fascination with water is one of those characteristics of those whose lives are impacted with Angelman Syndrome,…
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Angels in Action May-June 2015
P.J. Snyder (Age 27, has Angelman Syndrome del +) crossing the finish line last August at the Boulder Ironman. His partner Dennis, with Athletes in Tandem, finished the 140 mile event in 15.5 hours. What an awesome experience!
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Editor’s Letter May-June 2015
May is here and many of us in the US are getting ready for the annual walk for the Angelman Syndrome Foundation. This will be my 5th year hosting the walk in Florida. Our family looks forward to it all year. When my son Nathan was diagnosed at 2 and a half years old, we left the Geneticists office pondering on what she had just told us. She said Angelman Syndrome was rare but I did not truly understand what that meant to the general population of people. Was he the only one in Florida? I remember feeling so isolated. Fast forward just a few quick years and our Florida…
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Editor’s Letter March-April 2015
“Spring has sprung. Here in Florida, the flowers are blooming and allergies are roaring. The beautiful weather in spring seems to inspire a sense of renewal and fresh ideas. The shamrocks in the grass always grab my attention for a second glance in hopes of finding a four-leaf clover and capturing some good ‘ol’ “Luck of the Irish!”. That was the inspiration for this edition. I recently had the opportunity to chat with fellow Angel Mama Aisling Cullen from Ireland. I just adore the Cullen twin boys, Zach and Luke from Ireland. They are featured on the cover and in our ‘Angels in Action’ segment. Read about how Aisling describes…
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International Angelman Day 2015 – Switzerland
http://www.angelman.ch/
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Matthew’s Friends – Ketogenic Dietary Therapies
Intractable (Drug Resistant) Epilepsy; 1 in 104 people are affected with epilepsy in the UK** and over 50 million worldwide. It is one of the most common serious neurological conditions with approximately 30 different epilepsy syndromes and over 38 different types of seizures. The majority of cases of epilepsy can be treated successfully with modern anti-epileptic drugs (AED’s) used either as single agents or in combination. However, approximately 30% of cases are classed as having drug-resistant or intractable epilepsy, where seizures persist despite the appropriate use of two or more AED’s and the possibility of achieving seizure freedom with additional medication is extremely low. Ketogenic Dietary Therapies: The Ketogenic Diet…
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Introducing The Kourkouta Family And The Angelman Greece Organization
By Clairy Kourkouta “Whenever I thought of myself as a mother, it never crossed my mind that I could have a child with special needs.” I always admired the families of special needs children so much and in fact I was saying that for people with special needs it’s really difficult to live in Greece, since common things such as government allowances, extra benefits, schools etc are things that someone has to look for by him/herself. A year ago and after a series of specialized tests, we found out that our sweet little girl, Olia has Angelman Syndrome, del +. By the time we got the results, we were sure…
