AS Family article
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Have Fun This Summer And Enjoy The Outdoors With A Swing
As seen in Angelman Today Magazine. Indoor and Outdoor swings with a variety of safety features are now available at the Ultimate Amazon Special Needs Shop.Categories are now available to help make shopping easier. We have created one specifically for Indoor and Outdoor Swings. Today there is such a variety of options available. Yes, we have fun swings that support adult sizes also. Hang them on a tree outside or use a stand made of steel for indoors.
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Have Fun This Summer While Traveling
Traveling tips for short or long vacations By Erin Bates Summer is here and planning activities with your child with Angelman Syndrome can be hard. I can remember scrolling through my Facebook news feed and see these family vacation pictures and ask myself “Will that ever be us?” I still get anxiety at the thought of a trip but I realize how important it is to create memories the kids will love and make it a trip where my son can just be a kid. I have learned that an Airbnb works best for us. They are reasonably priced and a home-style setting helps both my son and my anxiety.…
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New Children’s Book Jesus, Let’s Talk By Lisa Jamieson
We recently caught up with the very busy Angel Mama, Lisa Jamieson to learn about her new book Jesus, Let’s Talk. A delightfully visual exploration of basic prayers for the young and young at heart Jesus, Let’s Talk helps children, early readers, and people with developmental differences enjoy the sweet basics of conversation with Jesus. There are many ways to worship and this natural approach to prayer inspires both the young and young at heart. Colorful photographs of children and young people celebrate that the fingerprints of God are on all people, all around the world. The book also highlights key prayer words using American Sign Language. Young ones who…
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Angel Goes Packing
By Alisa Guilietti Hi, my name is Nicolas and I am a 15-year-old who has Angelman Syndrome (AS). It’s a rare genetic disease affecting my 15th chromosome. For me, it means I speak only two words rarely, my walking is unbalanced, I need help with a lot of my daily activities and I really like getting into things, so someone needs to be around me all of the time. I am also generally a very happy guy. I can’t write, but my mom knows me pretty well, so she’s writing what she thinks I would say if I could. Over ten years ago, when I was four, our family learned…
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Meet Josh – Seizure free with CBD
Josh is 2 years old, he was diagnosed with Angelman Syndrome and having seizures every week. Video of his journey coming soon to our YouTube Channel! Thanks to CBD Oil (Cannabidiol) he has been seizure-free for OVER 1 YEAR!
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This Is Max
Frequently asked questions about Low Glycemic Index Treatment (LGIT) Edited by Heidi H. Pfeifer, RD, LDN, Clinical Dietitian at Massachusetts General Hospital 1. What is the Low Glycemic Index Treatment (LGIT)? The LGIT is a special high-fat diet similar to the ketogenic diet that is used for difficult-to-treat seizures. It focuses on both the type of carbohydrate, low glycemic index, as well as the amount of carbohydrate-based on portion sizes and household measurements. The glycemic index (GI) is a measure of the effect of carbohydrates on blood sugar levels. When carbohydrates are digested, they release glucose into the bloodstream. Carbohydrates that digest rapidly have a high GI. Carbohydrates that are…
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Life With An Angel
By Efi Paschalidou My husband and I wanted a child more than anything else in the world. After two years of trying we saw the magic line on the pregnancy test. Our joy was unspeakable. But unfortunately my pregnancy was difficult from the start. Placental abruption, hemorrhage, contractions from the 6th month, not being able to feel the baby, prematurity. We said that it is our child and we would adore it even if something went wrong. Finally we held her in our arms after many days in the incubator. Our doctor and the other doctors in the hospital told us that our baby was fine, that it was a…
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Angels in Action – Melissa Adams
By Kat Adams Melissa is 12 years old and has Angelman syndrome UPD. She loves to play games and laugh at her big Brother Jacob’s jokes, she has a wicked sense of humor! Melissa won the ‘Child of courage’ award at an event in her home town, I was very proud that her fellow citizens chose to recognize her daily struggles and her massive achievements in this way. Melissa experiences life in such a way that every day is an adventure, she brings so much love and happiness into both mine and Jacob’s lives. We have set up a small Foundation in Melissa’s name to help support research into a cure for…
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Inspirational Parent Quotes – Linda Rafert Yoakam
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Inspirational Parent Quotes – Regie Hamm
