Angelman Syndrome Belgium

Angelman Syndrome Belgium, AS Family article

Family day at the zoo – Angelman Syndrome Belgium

February 4, 2015 / Comments Off on Family day at the zoo – Angelman Syndrome Belgium

Family Day at the Zoo in Antwerp By Inge, (Mum to Merle) We were hesitating to go or not to go to the Zoo, an activity organized in September this past year by the Angelman Syndrome of Belgium. From Poperinge, our hometown, it is a travel of about 2h 40 min by train which is quite a long time for Merle, our Angelman child. She can be quite unpredictable. Anyway, we decided to go for the adventure. ☺ Finally, we arrived somewhat later than the other families. In the morning we explored the park and during our walk through the park we met several other families with an Angelman child.…

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Angelman Today

My son, Nathan, was diagnosed with Angelman Syndrome shortly after his second birthday. He didn’t walk until he was almost three years old. The prognosis that doctors gave him was grim. He wouldn’t be able to walk, talk, or do much of anything. The doctors said that Nathan would have epilepsy, constipation, feeding issues, acid reflux, and sleep issues. Therefore, he would require lifelong care.

Today, Nathan runs, says “Mama and Papa”! Nathan’s seizures, that started when he was 15 months old, have stopped due to dietary therapy. Also, he has no more acid reflux, no more constipation! His sleep disorder is under control without medication. He sleeps ALL NIGHT! We have beaten the odds of Angelman Syndrome. He is not lucky, his progress was not by chance but because I started him on dietary therapy very early. Monitoring his health very closely has been crucial. Very specific, and in-depth testing, allowed us to dial in his health like a fine tuned race car.

This is the hope and inspiration I want to share with the world! His genes are not his destiny.