AS Resources
-
Back to School Resources
As summer winds down, the back-to-school season brings a mix of excitement and challenges for parents, teachers, and students. For our families with Angelman Syndrome, this transition can be particularly complex. Ensuring a smooth return to the classroom requires careful planning, clear communication, and the right resources. Here’s how you can help your child have a successful school year. Preparing for the Transition Re-establish Routines: Start adjusting bedtime and morning routines a few weeks before school starts. Consistent schedules help children adapt more easily to the school day. Visit the School: If possible, arrange a visit to the school. Most school will schedule a Back-to-school or Meet the Teacher night.…
-
November is Epilepsy Awareness Month
“Genes are not our destiny, they are contantly being altered”. Dominic D’Agostino, PHD Watching our sweet children suffer from epilepsy is heartbreaking. Every second feels like an eternity. When an Angel is lost due to SUDEP (Sudden Unexpedect Death in Epilepsy) it is felt by the entire community. Epilepsy affects the majority of individuals with Angelman Syndrome but it does NOT mean that nothing can be done. We are going to share with you stories from several AS families that have been able to STOP seizures or significantly reduce them with diet therapy. Did you know that there was a small clinical study done in 2012 on the most flexible…
-
The 2023 Holiday Gift Guide!
The Holiday Gift Guide is here! Your heart will fill with joy when their face lights up with the perfect gift.We know that shopping for your loved one with special needs can be challenging. Every year we create the Holiday Gift Guide to help make your shopping easy and their holiday magical! This year’s 2023 Holiday Gift Guide is full of great gift ideas for all ages including; 🎁 sensory toys🎁 learning toys 🎁 adaptive clothing🎁 stocking stuffers 🎁 gifts under $25, and more! Click the button below to download ⬇️ CLICK HERE TO DOWNLOAD YOUR HOLIDAY GIFT GUIDE. Click here to visit the Ultimate Amazon Special Needs Shop Follow The…
-
Back to School Tips for Parents of Children with Special Needs
It’s time for a new school year and “new” is not always easy so we have dedicated this blog post to help you and your loved one get back into the school routine. Master the Mindset Be aware of any negative feelings or anxiety you may have about the new school year. Your child will pick up on that. Look forward to the new year with a positive mindset. Feel excited about all of the opportunities they will have such as, learning new things, make new friends, and feel included by their peers. Also, feel confident that you have done your best in the IEP meeting. There will be more…
-
Best iPad Apps List Suggested by Parents
It is no secret that many Angels LOVE their iPad. Some learn faster than others and that’s ok. There are some Angels that are not the least bit interested in using an ipad. Sometimes finding the right app is all you need to spark interest and help them develop a longer attention span. It will also motivate them to practice using their index finger. Here is a list that we have compiled from fellow parents. Many of these apps are FREE! In a recent poll the most popular app for Angels is YouTube! There is a plethora of content on YouTube. One thing parents can do is create an account…
-
Have Fun This Summer And Enjoy The Outdoors With A Swing
As seen in Angelman Today Magazine. Indoor and Outdoor swings with a variety of safety features are now available at the Ultimate Amazon Special Needs Shop.Categories are now available to help make shopping easier. We have created one specifically for Indoor and Outdoor Swings. Today there is such a variety of options available. Yes, we have fun swings that support adult sizes also. Hang them on a tree outside or use a stand made of steel for indoors.
-
The Global Angelman Syndrome Registry
It is hard to believe that it has been a year since the Global Angelman Syndrome Registry was launched. This project is now the largest ever Angelman syndrome study to date, with over 450 participants, call us greedy but we want more. There are over 7000 people that “like” the Angelman Today Facebook page, we know that we can increase these numbers drastically and we want to take some time to explain to you why you should care and how your participation can shape Angelman syndrome research right now. To borrow from Rare Disease advocate Sharon Terry in her Ted talk, “Researchers don’t share. People told us you can’t herd…
-
What Angel Parents are saying about the Kayserbetten bed
“Justin absolutely loves his bed, he goes to it right after his bath every day after school for his nap! He takes me by the hand to lead me there, lol. We got it last December for my house. It took me a little over a year to get him one at his father’s house since his old Vail bed had been recalled years ago and we didn’t know ’til I got his first bed! Now he is safe at both houses with this awesome bed! He sleeps 2 1/2 hours every day after school and from 11 pm ’til 6:30 am each morning!” – Barbara Barclay For more info…
-
Helpful Products For Back To School
Here is a list of products to help you prepare for getting the kids back to school! I’m sure you already have your basic list of school supplies so we wanted to tell you about some of these not-so-common products that may help. We included a few wearable items to support sensory needs. Compression clothing and weighted vests can help calm and improve focus. We also included a unique item we just discovered for those that like to dig and I’m not talking about the sandbox. Fun and Function is a favorite site for the full spectrum of products. Under Huggers – Soothing pressure kids can wear all day for…
-
Back to School Safety Products for Special Needs
Safety is always the number one priority for our loved ones with special needs. Here are just a few products that are high on our list. If i Need Help is a collection of wearable QR codes made for our loved one that may wander. The QR codes can be scanned to reveal contact information for guardians and any specific details that you would like to include about the individual in case of emergency. This information will be kept in a live working special needs registry that is created and controlled by the caretaker. Save $ on your first order by using promo code: Angelman Todaywww.ifineedhelp.org GPS Trackers are becoming…
