Books
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Books about Angelman Syndrome
Happy New Year! This is the first blog post of the year and we wanted to share all of the books that we could find about Angelman Syndrome. We polled the community for a list of books that they have read and recommend. Some books have been written by educators, parents or made to support individuals with AS. We are so excited about all of the books that are now easily available because they all help to raise awareness about Angelman Syndrome. Please let us know if we need to add any others to this list. The first book on the list was written by Stephen N. Calculator Angelman Syndrome:…
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Keto Power Comic Book Coming Soon!
Very soon you will be able to purchase the first ever comic book pamphlet about the Ketogenic diet. Learn how to use Keto Power to help fight epilepsy. Written by Sybille Krafty Bellamy, Mom to Maxent. Maxent was born with Angelman Syndrome, he was medically fragile from the beginning of his life. Sybille was determined to learn how to spend time and money in the kitchen and not in the hospitals. We will keep you posted and let you know as soon as it is available.
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Books about Angelman Syndrome
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New Book: Life With An Angel
“What is Angelman Syndrome?” That is usually the first question we ask the doctor as soon as our child is diagnosed with this rare disease. The following questions may be of the kind: What can we do? Is there a treatment? What is their life expectancy? As soon as we become aware of the fact that there is no treatment or cure, our whole life is turned upside down. Each individual family deals with the situation the best way they can. Some choose denial. However, sooner or later, they will try to contact other families in the same situation who will be able to understand, to share their own experience…
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Angelman Anecdotes – Community Project by Alice Evans
Angelman Anecdotes “The breaking of that awful feeling of isolation is the greatest gift one Angelman family can give to another…. Those of you who will share your experiences will do it because in the Angelman family that is what we do. Whatever problems you have to meet, others not only understand but have found a solution. Whatever road you have traveled, others have traveled before you, so there is no need to travel alone.” Audrey Angelman Audrey and Harry Angelman, Orlando 1993 Whitney and Ashleigh (Sorenson) Evans Family Members: Let’s honor Audrey’s words by making a family section titled, Angelman Anecdotes (of an updated version of Angelman Syndrome from…
