Diet Therapy
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November is Epilepsy Awareness Month
“Genes are not our destiny, they are contantly being altered”. Dominic D’Agostino, PHD Watching our sweet children suffer from epilepsy is heartbreaking. Every second feels like an eternity. When an Angel is lost due to SUDEP (Sudden Unexpedect Death in Epilepsy) it is felt by the entire community. Epilepsy affects the majority of individuals with Angelman Syndrome but it does NOT mean that nothing can be done. We are going to share with you stories from several AS families that have been able to STOP seizures or significantly reduce them with diet therapy. Did you know that there was a small clinical study done in 2012 on the most flexible…
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5 Tips to help you save money on groceries for a therapeutic diet
1. Buy in bulk from big box stores like Costco, Sam’s Club or Bj’s Wholesale. 2. Look for coupons in the mail, newspapers, online or grocery store apps. 3. Create weekly menus with your budget in mind. Click here to get $15 off your first order from Walmart Grocery. 4. Shop around the perimeter of the store. -The middle aisle usually contains processed foods that you want to avoid. 5. Buy fruits and vegetables that are in season. Seasonal fruits and veggies are less expensive than when out of season. *Bonus: Buying the fresh cuts of meat with the higher fat content is less expensive than the lean cuts…
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Get Started On The High-Fat, Low-Carb Diet
Let’s start with listing healthy fat options that may not be so easy to find at your local grocery store. It is important to note that when starting a high-fat therapeutic diet make sure you are being followed by a medical professional. Use the best quality fat sources. Eat real unprocessed foods will be the key to success. We have created a helpful resource within the Ultimate Amazon Special Needs Shop – Dietary Therapy Category. We have listed helpful books and healthy fat options that you can get delivered right to your door. Diet therapy could be challenging as most things are but it will be worth it! Amazon Prime…
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Treating Constipation
Treating Constipation Easy tips for treating constipation – A common symptom of Angelman syndrome. When you see constipation listed as a symptom of Angelman syndrome, do not lose hope that it cannot be treated. A diagnosis of Angelman syndrome does not necessarily mean one is destined to suffer from all of the symptoms often associated with the genetics. Many individuals that follow these easy steps are able to have healthy digestion without medications, enemas or natural laxatives. Here is what you can do: Eat a whole food, high-fiber diet.Add 2 tablespoons of ground flaxseeds to your daily diet.Eat healthy fats like avocado, olives, olive oil, grass-fed butter, coconut oil and…
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Keto Power Comic Book Coming Soon!
Very soon you will be able to purchase the first ever comic book pamphlet about the Ketogenic diet. Learn how to use Keto Power to help fight epilepsy. Written by Sybille Krafty Bellamy, Mom to Maxent. Maxent was born with Angelman Syndrome, he was medically fragile from the beginning of his life. Sybille was determined to learn how to spend time and money in the kitchen and not in the hospitals. We will keep you posted and let you know as soon as it is available.
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Books about Angelman Syndrome
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This Is Max
Frequently asked questions about Low Glycemic Index Treatment (LGIT) Edited by Heidi H. Pfeifer, RD, LDN, Clinical Dietitian at Massachusetts General Hospital 1. What is the Low Glycemic Index Treatment (LGIT)? The LGIT is a special high-fat diet similar to the ketogenic diet that is used for difficult-to-treat seizures. It focuses on both the type of carbohydrate, low glycemic index, as well as the amount of carbohydrate-based on portion sizes and household measurements. The glycemic index (GI) is a measure of the effect of carbohydrates on blood sugar levels. When carbohydrates are digested, they release glucose into the bloodstream. Carbohydrates that digest rapidly have a high GI. Carbohydrates that are…
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The Low Glycemic Index Treatment for Angelman Syndrome and Prader-Willi Syndrome
By Sybille Kraft BellamyMother of Maxent, AS 14 years old. Thirteen years ago in July 2003 Maxent was diagnosed with Angelman syndrome (AS), he was 18 months old. Today he is a handsome teenager in excellent physical condition with no medical issues. Nevertheless, this was not always the case. From infancy to his toddler age he was chronically sick and he spent more time in the hospital than at home. Very quickly I had the certitude that diet should be the best accessible and fastest way to help him. Following my own observation and encouraged by Max’s pediatrician (and later by our neurologist), I started paying attention to his diet…
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Healthy After School Snack – Carrots and Hummus
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Creamy Gelatin Fruit Snack
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Nutrition labeling and the dangers that could be hiding
By Marilyn Kennedy We are all pretty conscientious about reading food labels, especially those of us who have or who are caretakers for loved ones who have serious illnesses, allergies, and/or dietary restrictions. I recently went to the outpatient lab at my local hospital to have a routine blood draw. About halfway through, I began to pass out so the phlebotomist had me put my head between my knees, put a cold compress on the back of my neck, and offered me a juice box. I had the presence of mind to ask if the juice contained sugar. The response was, “I don’t know.” I took one or two sips…
