Diet Therapy
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Matthew’s Friends – Ketogenic Dietary Therapies
Intractable (Drug Resistant) Epilepsy; 1 in 104 people are affected with epilepsy in the UK** and over 50 million worldwide. It is one of the most common serious neurological conditions with approximately 30 different epilepsy syndromes and over 38 different types of seizures. The majority of cases of epilepsy can be treated successfully with modern anti-epileptic drugs (AED’s) used either as single agents or in combination. However, approximately 30% of cases are classed as having drug-resistant or intractable epilepsy, where seizures persist despite the appropriate use of two or more AED’s and the possibility of achieving seizure freedom with additional medication is extremely low. Ketogenic Dietary Therapies: The Ketogenic Diet…
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LGIT – Crackers
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LGIT Almond Mousse
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Dr. Ron Thibert Answers Your Questions
Ron Thibert, DO Director, Angelman Syndrome Clinic Director, Dup15q Center Ronald Thibert, DO, MsPH is a Pediatric Epileptologist with a interest in the treatment of epilepsy in children with autistic spectrum disorders. He is the director of the Angelman Syndrome Clinic and the Dup15q Center for MGHfC and the Lurie Center. Q: The diet seems so complicated prior to getting the hang of it – so where do we begin? Thibert: The diet is complicated and can be difficult but the important thing is to not get discouraged – it can take as long as 3-6 months to really start working. Dietary therapy should always be done under the supervision…
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The Fourth International Symposium For Diet Therapies
Matthew’s Friend’s Symposium – Liverpool UK 2014 By Sybille Kraft Bellamy A couple of weeks ago I had the opportunity to attend one of my favorite scientific symposiums: The 4th Global Symposium Ketogenic Dietary therapies for Epilepsy and other Neurological disorders. Over 27 countries were present sending the most eminent neurologists, researchers scientists in epilepsy, cancer, molecular biology and nutrition. They presented their clinical trials and laboratory results in the field of the Ketogenic diet. Angelman syndrome was represented by Dr. Elizabeth Thiele the neurologist from Mass General hospital in Boston who received the John Freeman award from Nancy Abraham (Co-founder of The Charlie Foundation) for her outstanding work in the…
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Hello Summer!
Hello Summer!! By Sybille Kraft Bellamy “True health starts with fresh fruits and veggies” Summer is the perfect time to enjoy seasonal fruits and vegetables. The LGIT diet is a healthy diet when a high diversity of good quality products are used. No “strange” food! Only real natural food without packaging! Our family, like most of the families who have an individual following the LGIT, eat low glycemic food. The principal difference is the modification of the fat ratio. Max has a higher fat ratio in all his meals in order to obtain the effects of the LGIT. Since mid spring, we have been able to find great fruits and…
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Healthy Fats – Avocado Tuna Lunch idea
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Dr. Anna Larson: A Life-Changing Encounter Leads To A Lifetime’s Inspiration
We’ve all heard stories about unexpected encounters that change people’s lives in profound ways. While not all of us have experienced that kind of event, Dr. Anna Larson is one who has. It came when she was applying to medical schools. A friend mentioned that a couple she knew was seeking a caregiver for their son, Jake Pritzker, a young adult with Angelman syndrome (AS) living in St. Paul, Minnesota, and Anna accepted the task. Once she started working with Jake, it helped focus her future plans on specializing in pediatric neurology and in particular, epilepsy and AS. It is a path she is still pursuing, though her accomplishments are…
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Eva’s Journey With Seizures And What Her Mom Is Doing About It
By Claire Lerman On the 28th June 2013 our beautiful little 16mth old Eva was diagnosed with Angelman Syndrome. Just 4 months after her diagnosis Eva started with epilepsy and has been in & out of hospital numerous times. All the medications we were given completely failed to control Eva’s seizures. We had read about something called a Ketogenic diet & we were desperate for Eva to be able to try this as a form of medication. After battling to get consent to go onto the diet we eventually had our neurologist’s consent. Eva started the diet on the 4th March 2014 at which point her seizures had ramped up…
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Juicing
Juicing! By Sybille Kraft Bellamy A perfect way to provide a great amount of vitamins and minerals suitable for individuals following LGIT. Juicing has no limit! Let your imagination do the work! There is so many options to make juices with the LGIT-authorized list of fruits and vegetables. One of Max’s favorite juices is a mix of carrot, celery, apple, cucumber, ginger, turmeric, and one teaspoon of olive oil. I keep the vegetables as the top quantity on the list of ingredients followed by one or two pieces of fruit and the olive oil helps to homogenize the juice. You can drink the juice, freeze it as a Popsicle, keep…
