Diet Therapy
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Going Back to School and Maintaining LGIT
Going Back to School and Maintaining LGIT By Sybille Kraft Bellamy Going back to school for LGIT students can be easy to prepare. Personally, I consider Max as being allergic to sugar! The same way he wears a red wristband in the Hospital Warning of Dextrose/glucose allergies, his teacher, aides and therapists are informed about his ketogenic diet. It is one of the main items on his IEP. We have a controlled protocol with the staff that lists the food allowed and the amount authorized. I prepare Max’s lunch daily and if he did not eat the way he should for his breakfast I write a note in his communication book…
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Angels in Action – Billy’s Story
Angels in Action Q&A with Angel Mama Linda Rafert Yoakam Q. Tell us about your favorite outings? Billy loves to be entertained. And he’s not picky. He enjoys movies, sporting events like minor league baseball or indoor football, local community plays or Broadway-caliber plays, musicals, concerts. Those are some of our favorite outings. Because he enjoys outings so much, we’ve resorted to season tickets to events. Swimming and water activities are not the draw they once were in his childhood. Billy understands more than he’s given credit for…here he is at the Boston Public Library making sure I don’t miss the beautiful paintings on the walls being described by our…
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Gluten Free Living
Gluten Free Living By Isabel Orellana Over the years, gluten has become a much debated substance. But what is the fuss all about? It is estimated that 5-10 percent of the US population is sensitive to gluten. This would mean that 5-10% of our angels are sensitive. However, the number is probably much higher. When our angel first got diagnosed at 11 months we had never given him gluten because our pediatrician had advised us not to start with wheat before age 1. After the diagnosis and investigating about neurological differences and food related issues, it became clear to us that our angel would continue his gluten free journey for…
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LGIT Testimonial – Anna’s story
LGIT Testimonial – Anna had a terrible start. She could not drink and because of this she was hospitalized 3 weeks after her birth. They soon discovered she had epilepsy and here in The Netherlands I understood, almost all babies with epilepsy get Phenobarbital. Because I was not satisfied with the care Anna received we decided to move to another hospital. So almost 6 months later, the new neurologist advised us to stop with Phenobarbital and start with Keppra. And it was a good choice. When Anna was 1 year old she finally got diagnosed: Angelman Syndrome. With Keppra, we succeeded to keep her seizure free for almost 2 years.…
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The Power of Cooking
The Power of Cooking Angelman syndrome, ketogenic diets and LGIT By Sybille Kraft Bellamy One of the best ways to naturally help our angels is by giving them a nutritious healthy diet. Our angels are fragile and very sensitive to their environment. Little things, minor changes can trigger dramatic consequences. Each child is unique, each parent is special. We have to rediscover the power of food. Therapeutic diets like ketogenic diets have been used for years to help control epilepsy. Today, the LGIT (Low Glycemic Index Treatment) is one of the easiest diets to give to our angels. It is one of the weapons we can use to protect…
