This July 2016 marks the third anniversary of the very first edition of Angelman Today. The international reach and circulation of the magazine has been astounding, especially considering the topic of a rare neuro-genetic condition. This year we began publishing quarterly and strive for every edition to be better than the last. We want to provide you the reader with latest global news regarding Angelman Syndrome. As many of you may know, most Angelman organizations are run by fellow Angel parents and as parents and caretakers can only understand how difficult it is to carve out the time from our families and most importantly our Angels who require constant supervision.…

We are celebrating our 2nd year anniversary here at Angelman Today! Two years of creating this online magazine that has circled the globe countless times for our wonderful community. I could not do this alone. A big thank you to the many contributors who send me links, articles, and pictures to publish each month. This community is so amazing, if there is something online from a picture to an article they will even “tag” me to bring it to my attention for Angelman Today. For myself, it has been a fantastic opportunity for my creative expression and to share the information that I have learned from so many amazing parents…

May is here and many of us in the US are getting ready for the annual walk for the Angelman Syndrome Foundation. This will be my 5th year hosting the walk in Florida. Our family looks forward to it all year. When my son Nathan was diagnosed at 2 and a half years old, we left the Geneticists office pondering on what she had just told us. She said Angelman Syndrome was rare but I did not truly understand what that meant to the general population of people. Was he the only one in Florida? I remember feeling so isolated. Fast forward just a few quick years and our Florida…

“Spring has sprung. Here in Florida, the flowers are blooming and allergies are roaring. The beautiful weather in spring seems to inspire a sense of renewal and fresh ideas. The shamrocks in the grass always grab my attention for a second glance in hopes of finding a four-leaf clover and capturing some good ‘ol’ “Luck of the Irish!”. That was the inspiration for this edition. I recently had the opportunity to chat with fellow Angel Mama Aisling Cullen from Ireland. I just adore the Cullen twin boys, Zach and Luke from Ireland. They are featured on the cover and in our ‘Angels in Action’ segment. Read about how Aisling describes…

Welcome to 2015! A new year and new beginnings. I am an optimist and I believe in infinite possibilities. Every day is a fresh start to get one step closer to your goals, but entering into the new year is the time to create new goals and determine a plan of action. This time of year is so special because I use it to plan personal goals and family goals. I sat down with my oldest son and helped him set his goals for the year. I also write down the goals I have for Nathan. I include any products or therapy services I want him to start and skills…

“It is that wonderful time of year again.. I can’t believe it. Time really flies when you are having fun. We love the holiday season. We love decorating the house together, the holiday music (Frank Sinatra Holiday songs are a family favorite), traditional holiday meals, and sweet treats. I spend more time in the kitchen this time of year, but I enjoy it. I am grateful for this past year, it has been full of challenges and achievements. This year Nathan has started to not only use an iPad, but also understand and use an app called Touch Chat for (AAC) communication. He loves his iPad! His favorite apps are…

Summer fun is done and I hope you all had a great time either vacationing or just being home with friends and family, enjoying the warm summer nights. It’s that time of year again. Time to get the kids back to school or begin a new homeschool regimen. This is the time I start to think about goals for my kids in the new school year and have meetings with teachers to ensure we are all on the same page and working together. I also remain thoughtful of a favorite picture that accompanies a wise quote from Albert Einstein, it includes a monkey, a penguin, an elephant, a fish in a…

This marks the anniversary of the first edition of Angelman Today and the first magazine dedicated to individuals with Angelman Syndrome, their families, caretakers, and anyone wanting to know more about this genetic condition. This year has gone by very quickly, but so much progress has been made. We have partnered with many of the Angelman Foundations across the globe to unite in a single resource that makes it easy for families and those interested in Angelman Syndrome to learn about what life is really like, be inspired by what our loved ones can do, find products and services to help them in their daily lives, support those on therapeutic…

May is here and many of us in the US are gearing up for the annual walk for the Angelman Syndrome Foundation.  This will be my fourth year hosting the walk in Orlando, Florida. After my son Nathan was diagnosed, our geneticist handed us some information about AS by the Angelman Syndrome Foundation. I quickly went to the website to learn as much as I could. When I learned of the annual walk that I could host in my area, I had to get involved. I wanted to meet other families and see other Angels. I did not know how I was going to pull it off, but I was…