Sleep

AS Research, Sleep

The Search for Sleep in Angelman Syndrome – What you need to know about Melatonin

February 12, 2020 / Comments Off on The Search for Sleep in Angelman Syndrome – What you need to know about Melatonin

The Search for Sleep in Angelman Syndrome. Here are some of the benefits and risks associated with using melatonin to help individuals with Angelman Syndrome sleep. Sleep disorders are a symptom of having Angelman Syndrome. Do not confuse that for meaning every individual with AS is unable to ever achieve proper sleep. This is a very complex topic, so let’s start where Angelman Syndrome research started. Effects of Low Dose of Melatonin on sleep in children with Angelman Syndrome. In this study, they used 0.3 mg of melatonin. Blood samples were withdrawn to measure individual endogenous serum melatonin levels. They noticed a significant decrease in motor activity during sleep and…

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Angelman Today

My son, Nathan, was diagnosed with Angelman Syndrome shortly after his second birthday. He didn’t walk until he was almost three years old. The prognosis that doctors gave him was grim. He wouldn’t be able to walk, talk, or do much of anything. The doctors said that Nathan would have epilepsy, constipation, feeding issues, acid reflux, and sleep issues. Therefore, he would require lifelong care.

Today, Nathan runs, says “Mama and Papa”! Nathan’s seizures, that started when he was 15 months old, have stopped due to dietary therapy. Also, he has no more acid reflux, no more constipation! His sleep disorder is under control without medication. He sleeps ALL NIGHT! We have beaten the odds of Angelman Syndrome. He is not lucky, his progress was not by chance but because I started him on dietary therapy very early. Monitoring his health very closely has been crucial. Very specific, and in-depth testing, allowed us to dial in his health like a fine tuned race car.

This is the hope and inspiration I want to share with the world! His genes are not his destiny.