Clinical Trial Begins on a New Treatment Using Cannabis for Intractable Seizures in Children
CANNABIDIOL (CBD), the non-psychoactive compound of cannabis
There is a study underway to test the safety and efficacy of Cannabidiol (CBD), the non-psychoactive compound of cannabis.
Some of the experts involved are the Angelman communities’ very own specialists Dr. Elizabeth A. Thiele and Dr. Ronald Thibert of Massachusetts General Hospital. Both Physicians are members of the Scientific Advisory Committee of the Angelman Syndrome Foundation.
The study will provide a better understanding of the maximally tolerated dose and potential side effects of CBD as well as display its efficacy in two well-defined childhood epilepsy syndromes, Dravet and Lennox-Gastaut, which are very difficult to control even with medication.
Angelman Today will be following this study closely and will keep you informed.
For more info about this study go to: http://www.gwpharm.com/Phase1Epilepsy.aspx
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5 Comments
Lora
I have been using cannabis oil for my daughter for almost two years now. She does not have epilepsy or seizures, however, but behavioral and stomach issues. Cannabis is the one medicine that has helped her the most. She is even off all psychotropic drugs (which she was on for over ten years) .
I believe cannabis is a godsend.
Jeff Crouth
Lora,
I have been trying to learn about MMJ for my daughter. She ultimately tested negative for Angelmans but we are still dealing with extreme behavior and outbursts where she seems like she is in great distress. She has no language so she can’t let us know what is going on. Would you mind letting me know the
potency and mix of THC/CBD you use?
Thanks do much
Jeff
sandy harriman
This needs to be passed around. We need the empirical evidence. Right now all we have is anecdotal evidence, which is actually good enough for me.
Amanda
I am Amanda from texas usa,my son was suffering from this devilish disease called epilepsy when i heard about how cannabis oil have been curing this disease i decided giving it a trial,i saw an article on how cancer centre London provides cannabis oil so i contacted them via email londoncancercentre@gmail.com and within 5days the cannabis oil was delivered to my address and apart from that he gave me instructions on how to use the oil. My son is now free and no longer an epileptic patient.To my greatest surprise this cannabis oil works like a magic.
James Connell
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