My Sister has Angelman Syndrome – Documentary by a New Zealand Film Student.

February 2, 2015 / Comments Off

This documentary was created by Lucy, sister to Alice.

Alice has Angelman Syndrome.

“My name is Lucy Holyoake, I’m from Wellington in New Zealand. I’m a film student at University and I have a 17 year old sister with Angelman Syndrome. I would just like to share my short documentary film I made about my sister, Alice Holyoake. I would love for families with Angelmans kids to be able to see it, as I think they would be very interested.”

My son, Nathan, was diagnosed with Angelman Syndrome shortly after his second birthday. He didn’t walk until he was almost three years old. The prognosis that doctors gave him was grim. He wouldn’t be able to walk, talk, or do much of anything. The doctors said that Nathan would have epilepsy, constipation, feeding issues, acid reflux, and sleep issues. Therefore, he would require lifelong care.

Today, Nathan runs, says “Mama and Papa”! Nathan’s seizures, that started when he was 15 months old, have stopped due to dietary therapy. Also, he has no more acid reflux, no more constipation! His sleep disorder is under control without medication. He sleeps ALL NIGHT! We have beaten the odds of Angelman Syndrome. He is not lucky, his progress was not by chance but because I started him on dietary therapy very early. Monitoring his health very closely has been crucial. Very specific, and in-depth testing, allowed us to dial in his health like a fine tuned race car.

This is the hope and inspiration I want to share with the world! His genes are not his destiny.

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