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Angels in Action – Melissa Adams
By Kat Adams Melissa is 12 years old and has Angelman syndrome UPD. She loves to play games and laugh at her big Brother Jacob’s jokes, she has a wicked sense of humor! Melissa won the ‘Child of courage’ award at an event in her home town, I was very proud that her fellow citizens chose to recognize her daily struggles and her massive achievements in this way. Melissa experiences life in such a way that every day is an adventure, she brings so much love and happiness into both mine and Jacob’s lives. We have set up a small Foundation in Melissa’s name to help support research into a cure for…
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Angels in Action – Dylan
Dylan is 7 years old and LOVES riding his new bike! He received it from another Angelman family at the DC walk in May. He enjoys riding into curbs and riding up into the neighbors’ lawns. He gets a big kick out of it! Dylan also loves riding his therapy horse Lark, doing anything outside, playing in water, watching TV/movies, Curious George, Thomas the Train, Disney, and being around other people. He is very social and makes friends everywhere he goes. He does not know a stranger and gives hugs and kisses to everyone. He loves his family and they all love him to pieces. Dylan will be in first…
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Angels in Action – Maddie
By Chris Starks, Father to Maddy, age 9 Madison Jordan Starks is our beautiful albino Angel that has truly blessed our family with her presence and her smile. Her ability to capture everyone’s attention with her blue eyes and long curly blond hair is a wonder and the norm everywhere we go. Madison is deletion + and suffers from seizures only when she is either overly exhausted or has a fever. Although Madison can’t talk and is limited on how long she can walk on her own due to her being visually impaired she has made great strides to become more independent. Maddy as she is affectionately known is the…
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Angels in Action March-April 2015
Luke and Zach are identical twins (UBE3A) who will be 8 in May and are the youngest of six boys.We live in a little coastal village called Downings, Co. Donegal, Ireland. Living in a small rural community definitely has its advantages as the support that we get from family and friends cannot be bought. My family are involved in the hospitality trade, so everyone knows the boys and they are accordingly acknowledged wherever they go. It’s lovely to walk in to the hotel and there’s high 5’s going on all around- little celebrities in their own right! The twins have very different personalities with Luke being the more serious…
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My Sister has Angelman Syndrome – Documentary by a New Zealand Film Student.
This documentary was created by Lucy, sister to Alice. Alice has Angelman Syndrome. “My name is Lucy Holyoake, I’m from Wellington in New Zealand. I’m a film student at University and I have a 17 year old sister with Angelman Syndrome. I would just like to share my short documentary film I made about my sister, Alice Holyoake. I would love for families with Angelmans kids to be able to see it, as I think they would be very interested.”
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Angels in Action – Joshua
Angels in Action By Yvonne Hamrick, Mom to Joshua age 10 Joshua is an artist. He LOVES to paint. Our family is so proud of him for pursuing his passions, and we want to share that dream with everyone. Joshua enjoys painting for others, but mostly for himself. He has been an artist all of his life, and he knew it before anyone else did. We are so glad that we gave him that first opportunity to paint! Not only are Joshua’s paintings a means of expressing himself, but it’s also a great organizing tool for his body. The squishy paint between his fingers and sometimes his toes. Joshua often…
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Angels in Action – Taylor
Celebrating the Abilities of our Angels Taylor is working hard in therapy. Pictures provided by Julie Rice, Mom to Taylor, age 3 del +
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Angels in Action – Kamaray
Celebrating the Abilities of Our Angels By Andria Sivill, Mom to Kamaray This is KamaraySivill, age 7 from South Sioux City NE riding her new adaptive TRIAID bike she won through the Great Bike Giveaway. Kami is enjoying her summer & newfound freedom riding in the outdoors. Thank you, Bart, Andria & Kamaray Sivill In the previous March-April edition of Angelman Today, we helped to promote The Great Bike Giveaway through Friendshipcircle.org and we are proud to announce a winner from our very own Angelman community!!
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Angels in Action – Ishaar
Celebrating the Abilities of our Angels By Kiren Sandhu, Mom to Ishaar, age 5 Throughout the days (and nights), there is a lot of laughter. Ishaar does all of the laughing, and I smile and tell him how silly he is. I enjoy listening to his laughter as it means all is well in Ishaars world. Ishaar loves to pull my hair and smell it (its his way of being affectionate). He especially enjoys laughing as he is doing this. He is so strong that once he has a good grip, there is no escaping his clutch. So I am stuck until he decides ‘ok I’m done’. There have been times that I have been in a hurry to go somewhere, or in a…
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Angels in Action – Sebastian
Getting the diagnosis of Angelman Syndrome can be one of the most devastating moments for a family to go through. I still remember how confusing and terrifying it was for us. After receiving the diagnosis, we have lived through our biggest fears, our most excruciating pain, but what’s most important, we have also lived through our biggest moments of happiness. Sebastian was born 9 years ago. He was diagnosed with Angelman Syndrome (del+) shortly before turning 3. It took us three years to find out. On one hand, we were relieved to finally know, on the other, it was hard to hear that kids with AS had such a difficult prognosis.…
