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5 Tips to help you save money on groceries for a therapeutic diet
1. Buy in bulk from big box stores like Costco, Sam’s Club or Bj’s Wholesale. 2. Look for coupons in the mail, newspapers, online or grocery store apps. 3. Create weekly menus with your budget in mind. Click here to get $15 off your first order from Walmart Grocery. 4. Shop around the perimeter of the store. -The middle aisle usually contains processed foods that you want to avoid. 5. Buy fruits and vegetables that are in season. Seasonal fruits and veggies are less expensive than when out of season. *Bonus: Buying the fresh cuts of meat with the higher fat content is less expensive than the lean cuts…
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Editor’s Letter October – November 2016
The last quarter of the year is upon us and it never ceases to amaze me how fast time passes and although I enjoy the rollercoaster of events through the year the rhythm of time seems to slow, allowing me to simultaneously reflect and with eagerness and excitement plan for a new year. November is Epilepsy Awareness month and I would like to talk a little more about the importance of this. We understand that statistically the majority of individuals with Angelman Syndrome have epilepsy. When my son Nathan was first diagnosed with epilepsy, before the age of 2 (even before the AS diagnosis), the severity of it was never…
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Matthew’s Friends – Ketogenic Dietary Therapies
Intractable (Drug Resistant) Epilepsy; 1 in 104 people are affected with epilepsy in the UK** and over 50 million worldwide. It is one of the most common serious neurological conditions with approximately 30 different epilepsy syndromes and over 38 different types of seizures. The majority of cases of epilepsy can be treated successfully with modern anti-epileptic drugs (AED’s) used either as single agents or in combination. However, approximately 30% of cases are classed as having drug-resistant or intractable epilepsy, where seizures persist despite the appropriate use of two or more AED’s and the possibility of achieving seizure freedom with additional medication is extremely low. Ketogenic Dietary Therapies: The Ketogenic Diet…
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Eva’s Journey With Seizures And What Her Mom Is Doing About It
By Claire Lerman On the 28th June 2013 our beautiful little 16mth old Eva was diagnosed with Angelman Syndrome. Just 4 months after her diagnosis Eva started with epilepsy and has been in & out of hospital numerous times. All the medications we were given completely failed to control Eva’s seizures. We had read about something called a Ketogenic diet & we were desperate for Eva to be able to try this as a form of medication. After battling to get consent to go onto the diet we eventually had our neurologist’s consent. Eva started the diet on the 4th March 2014 at which point her seizures had ramped up…
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90% Improvement in Seizure Reduction
My interview with Dr. Ron Thibert from my blog in December 2012. I recently had the opportunity to catch up with the Angelman community’s very own trusted neurologist Dr. Ron Thibert! He is the Co-Director of the Angelman Syndrome Clinic at MassGeneral Hospital for Children in Boston. His specialties include Neurology and Epilepsy Service. Many families in our community travel from many other states just to see him. He really understands how to provide the best treatment for our kids! Angelman Syndrome is so rare and when it comes to their brain and seizures, our kids need the best! They need someone who has experience to draw from when deciding the…
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Clinical Trial Begins on a New Treatment Using Cannabis for Intractable Seizures in Children
CANNABIDIOL (CBD), the non-psychoactive compound of cannabis There is a study underway to test the safety and efficacy of Cannabidiol (CBD), the non-psychoactive compound of cannabis. Some of the experts involved are the Angelman communities’ very own specialists Dr. Elizabeth A. Thiele and Dr. Ronald Thibert of Massachusetts General Hospital. Both Physicians are members of the Scientific Advisory Committee of the Angelman Syndrome Foundation. The study will provide a better understanding of the maximally tolerated dose and potential side effects of CBD as well as display its efficacy in two well-defined childhood epilepsy syndromes, Dravet and Lennox-Gastaut, which are very difficult to control even with medication. Angelman Today will be…
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November is Epilepsy Awareness Month
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WHAT IS A MAPS DOCTOR AND WHY SHOULD I HAVE ONE?
MAPS – Medical Academy of Pediatric Special Needs Interview with Dr. David Berger Wholistic Pediatrics and MAPS Physician The Medical Academy of Pediatric Special Needs is a group of professionals who offer a Comprehensive Education and Fellowship to Medical Professionals for the care of children with Autism Spectrum Disorders and related Chronic Complex Conditions. Their mission is to prepare medical professionals to deliver the best possible care to children with ASD and other special needs conditions. Under the guidance of Daniel Rossignol MD, FAAFP, this uniquely designed scientific evidence-based course of study is designed by clinicians, for clinicians. MAPS Physicians are at the forefront of helping families by thoroughly assessing…
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Clinical Trial of LGIT Proves Effective for Reducing Seizures by 80-90%
Clinical Trial of Low Glycemic Index Treatment proves effective for reducing seizures by 80 – 90% Dr. Thibert and Dr. Elizabeth Thiele (both are members of the Scientific Advisory board for the Angelman Syndrome Foundation) were able to launch a clinical study to determine the efficacy of the Low Glycemic Index Treatment in reducing seizures in individuals with Angelman Syndrome. In July 2012 the results were in and published in Epilepsia and in the Angelman Syndrome Foundation newsletter. Epilepsia link: PubMed link: http://www.ncbi.nlm.nih.gov/pubmed/22779920 Read my interview with Dr. Thibert on my blog www.MeetTheFamiliesofAS.blogspot.com
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Angel Lina’s Testimony – LGIT
Lina’s Mom shares with us the success on LGIT and GFCF diet. Lina and her family are from Germany this article features both languages. Our angel Lina (deletion class 2) will soon turn 4. For her first 3 years of life, she was able to develop well without epilepsy. Right around her third birthday, epilepsy started with first febrile seizures. We started the LGIT diet in November of 2012 as well as treatment with Frisium due to many myoclonic seizures and developmental stagnation. In addition, in April we went gluten free and reduced casein intakes significantly. Ever since, Lina is doing well and of her myoclonic seizures not much is noticeable.…
