Sleep safety – Angelman Today

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KayserBetten beds and how they can provide a safe night’s sleep for you and your Angel.

May 4, 2017 / Comments Off on KayserBetten beds and how they can provide a safe night’s sleep for you and your Angel.

The KayserBetten bed is one of the most highly recommended beds by parents of children with Angelman Syndrome. This bed will meet your child’s medical, safety and behavior needs. One comment we keep hearing from parents is how well THEY sleep at night knowing their child is safe in their room. The beds are spacious, call and find out the right size for your child. The KayserBetten bed may be eligible through your insurance provider. For more info call 1-800-574 ext. 308 www.KayserBettenUS.com If you have a KayserBetten bed and would like to share your story with us, it could be featured in the next edition of Angelman Today. Email…

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Angelman Today

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My son, Nathan, was diagnosed with Angelman Syndrome shortly after his second birthday. He didn’t walk until he was almost three years old. The prognosis that doctors gave him was grim. He wouldn’t be able to walk, talk, or do much of anything. The doctors said that Nathan would have epilepsy, constipation, feeding issues, acid reflux, and sleep issues. Therefore, he would require lifelong care.

Today, Nathan runs, says “Mama and Papa”! Nathan’s seizures, that started when he was 15 months old, have stopped due to dietary therapy. Also, he has no more acid reflux, no more constipation! His sleep disorder is under control without medication. He sleeps ALL NIGHT! We have beaten the odds of Angelman Syndrome. He is not lucky, his progress was not by chance but because I started him on dietary therapy very early. Monitoring his health very closely has been crucial. Very specific, and in-depth testing, allowed us to dial in his health like a fine tuned race car.

This is the hope and inspiration I want to share with the world! His genes are not his destiny.

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